UCARE

The UCARE study helps researchers:

  • Learn what life is like after uterine cancer treatment
  • Understand what support women need during recovery
  • Include voices that are often missing in research
  • Improve care for future patients

Your experience helps doctors and researchers learn how to provide better care.

The UCARE study aims to:

  • Understand how personal and community factors affect recovery and well-being
  • Explore links between background, health status, and quality of life
  • Test methods for collecting surveys, medical records, and saliva samples
  • Build a foundation for future national research on uterine cancer survivorship

For most participants:

  • Participation lasts one survey session
  • Some participants may be contacted later for optional follow-up studies

You will always be asked before taking part in anything new.

 Here you can:

  • Complete study surveys
  • Review consent information
  • Learn more about the study
  • Contact the research team if you have questions

Your participation is voluntary, and your information is kept private and secure.

Study materials

This section includes the tools used in the UCARE study.

You will receive clear instructions before completing any materials.

UCARE study survey

You may be asked to complete a one-time survey.

Survey details:

  • Takes about 45-60 minutes
  • Can be completed:
    • Online
    • By phone
    • On paper at home

The survey asks about:

  • Your health and treatment
  • Daily life after cancer
  • Support from family, friends, and community
  • Emotional and physical well-being

Informed consent information

Before joining the study, you will review and sign an informed consent form.

Important points:

  • Joining the study is your choice
  • You may stop at any time
  • You may skip questions you do not want to answer
  • Consent can be given online or by mail

Your information is:

  • Stored in secure systems

What happens next?

After you complete the survey:

  • The study team will review your responses
  • If you choose to participate further, you may receive:
    • A medical record release form
    • A saliva collection kit by mail
  • A gift card will be sent after survey requirements are completed

You do not need to do anything else unless the study team contacts you.

Your choice!

Taking part in this study is your choice.

  • You can stop at any time
  • You can skip questions
  • There is no penalty for choosing not to participate

Your care at Indiana University Health will not be affected.

Your privacy

Your privacy is important to us.

  • Your answers are kept private
  • Your name is not shared
  • Only approved study staff can see your information
  • Study results are shared as group data, not individual stories

Your decision to join or not join the study will not affect your medical care.

Questions or concerns about the study?

If you are interested in the survey, please preview it below.

If you have questions about your rights as a research participant or about the survey process, you may contact the research team.. (link to contact page).

View Survey Consent Form