Latest News

Follow-Up Recommendations

Please check all of the tables listed below for follow-up treatment guidelines.

You may also download these tables in a PDF Format, print it out and give it to your primary care physician to keep a checklist of all screenings and tests that you have completed and still need to complete.

Recommended Studies for Rhabdoid Tumor Follow-up

Time off treatment History and Physical Exam (including blood pressure, social, and psychological assessment) Creatinine SGPT, bilirubin, total protein/ albumin, electrolytes including (Ca++, PO4, Mg++) CBC (with differential), platelets and Urinalysis Fasting Lipid Profile Dental Exam Hearing Screening Chest CT Scan Chest X-ray CT/MRI scan of abdomen and pelvis Abdominal Ultrasound MRI of brain Bone scan Echo/EKG Stages I, II, III Echo/EKG Stage IV
End of treatment check check check   check check check   check   check check check check
3 months check           check   check     check    
6 months check check         check   check   check check    
9 months check           check   check     check    
1 year check check check   check   check   check   check check   check
15 months check           check   check          
18 months check check         check   check   check check    
21 months check           check   check          
2 years check check check   check   check   check   check check check check
2 ½ years check             check   check        
3 years check check check   check     check   check check     check
3 ½ years check             check   check check      
4 years check check check   check     check   check     check1 check
5 years check check1 check check2 check check1   check1   check1       check1
6 years check   check   check                  
7 years check   check   check                  
8 years check   check   check                  
9 years check   check   check                  
10 years check   check3   check3                  
  • 1Then as indicated
  • 2Then recommended every 3 to 5 years
  • 3Then recommended yearly throughout entire life

Additional lab tests recommended:

  • Girls at age 13: LH, FSH, estradiol
  • Boys at age 14: LH, FSH, testosterone

If your child received abdominal radiation, the following tests are recommended:

  • For Females:
    Gynological exam: A baseline examination at age 18 and then as indicated by your physician
  • For Males and Females:
    Colonoscopy: Every five years beginning at age 35

If your child received lung radiation, the following tests are recommended:

For Females:

  • Clinical breast exam: yearly starting at puberty, and then every six months after age 25
  • Mammogram: Yearly, starting at age 25

For Males and Females:

Time off treatment Thyroid Blood Tests, T4 and TSH Pulmonary Function Test (PFT)
End of treatment check  
3 months    
6 months    
9 months    
1 year check  
15 months    
18 months    
21 months    
2 years check  
2 ½ years    
3 years check  
3 ½ years    
4 years check  
5 years check check1
6 years check  
7 years check  
8 years check  
9 years check  
10 years check3  

1Then as indicated

2Then recommended every 3 to 5 years

3Then recommended yearly throughout entire life

Site Design: Caroline Courtney