Patient Resources

IU Simon Cancer Center Support Group

If you would like to make an appointment to be seen by one of the myeloma specialists, please call (317) 944-0920 or 1-877-814-7594.

The IU Simon Cancer Center also offers a support program called First Mondays. First Mondays is a community-wide program open to those diagnosed with cancer and their families, not only those patients being treated at the IU Simon Cancer Center. First Mondays meets the first Monday of each month from 5 p.m. to 7:30 p.m. in the Cancer Pavilion. Call (317) 948-6086 for more information and to register.

We hold monthly Miles for Myeloma Planning Committee Meetings that are open to all patients and family members who would like to help. For more information about meeting dates and locations, please contact:

Amber Kleopfer Senseny
(317) 278-4510 or 1-800-643-6975
akleopfe@iupui.edu

Helpful Resources

The following are links to helpful resources that provide more information about multiple myeloma:

Clinical trials at the IU Simon Cancer Center: If you are interested in participating in a clinical trial, this site offers links to opportunities at the cancer center.

International Myeloma Foundation: The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. There are online support groups on this site as well as information about research and clinical trials. 

Multiple Myeloma Research Foundation: As a major funder of multiple myeloma research, this site provides information about research, treatments and clinical trials.

Aptium Oncology Myeloma Consortium: The IU Simon Cancer Center is a founding member of AMyC, a group of key opinion leaders in myeloma treatment and translational research working together to foster a collaborative environment for the development of innovative and strategic trials and support these trials from concept to completion.

What you need to know about multiple myeloma (National Cancer Institute): This site offers a comprehensive look at symptoms, diagnosis and treatment for multiple myeloma.

It’s important that myeloma patients take extra care to prevent falls, have healthy diets and engage in safe and appropriate physical exercise. “To Stay in the Game, Maintain  Your Frame,” a partnership between Novartis Pharmaceuticals and the National Black Church Initiative, provides helpful information. Please visit www.maintainyourframe.com.